Dystonia Medical Research Foundation (DMRF) is the leading organisation in the United States that supports patients and promotes research. We are privileged to work alongside them and other patient advocacy groups as part of the Dystonia Coalition. We are acutely aware that due to the rarity of dystonia and the complexity and variety of symptoms, real progress can only be made through collaborative cross border working. In particular an international effort is needed to drive forward the research agenda by providing critical mass for both numbers of patients but also the effective targeting of funding and resources. We are committed members of the Dystonia Coalition because we see this as the best structure to achieve these aims.