Join us in flying the flag for dystonia communities around the world.

100,000 people in the UK, and many more worldwide, are affected by dystonia yet the condition remains largely unknown to the general public. That’s why this summer, we’re challenging everyone to take on 100 miles (or 1,000 minutes of activity) in support of the dystonia community around the world while raising global awareness of the condition.


We are walking and cycling, painting and drawing, reading and writing, swimming and hooping, dancing and singing, cooking and baking, gardening and growing, creating and crafting. We are asking everyone to get involved and together, we will take dystonia awareness 25,000 miles around the world.

Join us at now to get started on your challenge!