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  • Great North Run

    Great North Run

    Event Type: Half-Marathon. Date: Sunday 12th September 2021. Location: Newcastle. Registration Fee: Free! Fundraising Target: £500. Read more

  • Virtual 2021 Virgin Money London Marathon

    Virtual 2021 Virgin Money London Marathon

    Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250. Read more

  • Dystonia around the world

    Dystonia around the world

    Join us in virtually travelling 25,000 miles from Dystonia UK’s HQ around the world and back, and raising £25,000 to help raise global awareness of the condition affecting 100,000 people in the UK alone each year. Read more

  • Great North Run
  • Virtual 2021 Virgin Money London Marathon
  • Dystonia around the world
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  3. Events

Challenge events

The ongoing COVID-19 pandemic is at the forefront of all our minds here at Dystonia UK. All of our events are under review on an ongoing basis. We will continue to follow and monitor Government advice over the coming weeks and months, regarding social distancing for mass gatherings and in person events. We will be continuing to plan ahead with our events in 2021, both internally and externally and will let you all know of any updates. 

We cannot wait until our dystonia community can be reunited in person but until then just know that we are here to support you.

If you would like to fundraise for us check out our virtual events or get in touch with our team to see what else you can do!
Dystonia around the world

Dystonia around the world

Join us in virtually travelling 25,000 miles from Dystonia UK’s HQ around the world and back, and raising £25,000 to help raise global awareness of the condition affecting 100,000 people in the UK alone each year. Read more

Start: 1st August, 2021 at 12:00am

End: 1st August, 2021 at 12:00am

Published: 26th June, 2020

Updated: 30th March, 2021

Author: Bernie McMahon

Location: UK

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Great North Run

Great North Run

Event Type: Half-Marathon. Date: Sunday 12th September 2021. Location: Newcastle. Registration Fee: Free! Fundraising Target: £500. Read more

Start: 12th September, 2021 at 12:00am

End: 12th September, 2021 at 12:00am

Published: 30th March, 2021

Author: Bernie McMahon

Location: Newcastle

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Virtual 2021 Virgin Money London Marathon

Virtual 2021 Virgin Money London Marathon

Event Type: Marathon. Date: Sunday 3rd October 2021. Location: Virtual so wherever you are. Registration Fee: £15. Sponsorship Pledge £250. Read more

Start: 3rd October, 2021 at 12:00am

End: 3rd October, 2021 at 11:45pm

Published: 9th February, 2021

Author: Bernie McMahon

Location: London

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Showing 12 of 3

Latest

  • How can you shape the future of neurological care?

    How can you shape the future of neurological care?

    06/04/2021 | People with dystonia have shared concerns about receiving support, healthcare and mental health services during the pandemic. A new app is gathering data to shape the future of neurological care.

  • Episode 3: Parents and carers

    Episode 3: Parents and carers

    Parents and carers are an essential part of the dystonia community, so in this episode we're introducing you to three phenomenal parents and their journeys helping their kids navigate their conditions.

  • Episode 2: Working with dystonia

    Episode 2: Working with dystonia

    For the second episode of the Dystonia Matters podcast, we're sharing lifestyle advice from Dystonia UK Ambassador, Gemma Stevenson and Nick Morgan.

  • Episode 1: Faces of the dystonia community

    Episode 1: Faces of the dystonia community

    In this first episode of the Dystonia Matters podcast, you'll meet three members of the dystonia community, Louise, Katie and Andy.

Most read

  • Make a donation

  • Callum's story

    Callum's story

    Callum's story, as told by his dad Neil. Callum is a young man with Down Syndrome who has neck dystonia (cervical dystonia).

  • Membership

  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.

  • What are the symptoms?

  • What are the causes?

  • Research update

  • What are the common treatments?

  • What are the symptoms?

  • Who does it affect?

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Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)


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