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  • diagnosis-and-treatment
  1. Help and support
  2. Diagnosis and treatment

Diagnosis and treatment


Diagnosis

If you are experiencing symptoms that might be dystonia, it is always best to discuss your concerns first with your GP and, if necessary, they will make an appropriate referral.

They will usually refer you to a neurologist specialising in movement disorders for tests however in cases of blepharospasm you may be treated by an ophthalmologist and for laryngeal dystonia you may be seen by an ear, nose and throat (ENT) specialist.

To make the diagnosis the neurologist will need to investigate.

They may do this by:

  • asking about your symptoms
  • asking about any other conditions you might have and your family history
  • carrying out blood or urine tests
  • organising a brain scan

It can sometimes take a long time to get a diagnosis of dystonia. This is because symptoms of dystonia can be similar to those of other conditions, so it is often a question of ruling these out first before arriving at a diagnosis.

Having a new diagnosis of dystonia can be a confusing and challenging time. We have put together a page especially for those who have been recently diagnosed to help you navigate the journey. You can also use our network of support groups in person or online to talk to others who have had similar experiences.


Treatment

Unfortunately, there is currently no cure for dystonia, however, there are a number of different treatments that can reduce the symptoms of dystonia.

The most appropriate treatment is determined by the type and severity of the diagnosis. You will need to decide with the help of your clinical team the best options for treatment. It may take a combination of several of the treatments to help with the symptoms. Your clinical team may be made up of a several different specialists in order to facilitate this.

Botulinum toxin injections

Botulinum toxin injections

Botulinum toxin affects the nerves where they meet the muscles and reduces the excess muscle activity caused by dystonia. Read more

Published: 9th September, 2019

Updated: 25th June, 2020

Author:

Complementary therapies

Complementary therapies

Complementary therapies refers to types of treatments outside of the traditional western medical mainstream when used alongside medical treatment. Read more

Published: 9th September, 2019

Updated: 25th June, 2020

Author:

Deep brain stimulation

Deep brain stimulation

Deep brain stimulation (DBS) is a surgical procedure in which two thin, insulated electrodes are inserted into your brain. Read more

Published: 9th September, 2019

Updated: 26th June, 2020

Author:

Denervation

Denervation

Selective denervation (SD) is a surgical operation that involves cutting through the nerves that control the overactive muscles causing the symptoms of dystonia. SD is used mainly for dystonia of the neck (cervical dystonia/spasmodic torticollis). Read more

Published: 9th September, 2019

Updated: 26th June, 2020

Author:

Medications

Medications

There are several different medications that can be used to manage your symptoms of dystonia. Read more

Published: 9th September, 2019

Updated: 25th June, 2020

Author:

Occupational therapy

Occupational therapy

Occupational therapy (OT) is the process of reviewing aspects of your daily life that you find difficult to see if there is an easier way that you can do them. Read more

Published: 9th September, 2019

Updated: 25th June, 2020

Author:

Physiotherapy

Physiotherapy

Physiotherapy (physio) is tailored exercise, manual therapy or education and advice or a combination of the three that helps to restore your movement and function. Read more

Published: 9th September, 2019

Updated: 25th June, 2020

Author:

Speech and language therapy

Speech and language therapy

Speech and language therapy (SALT) is a type of training that involves a mixture of exercises that can help you have better insight into how to speak more efficiently and effectively, improve swallowing and saliva control and reduce the risks of choking. Read more

Published: 9th September, 2019

Updated: 26th June, 2020

Author:

Treatment centres

Treatment centres

Read more

Published: 9th September, 2019

Updated: 26th June, 2020

Author:

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Showing 10 of 9

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  • What is dystonia?

    What is dystonia?

    Dystonia is a neurological movement disorder that is estimated to affect at least 100,000 people in the UK.

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Dystonia UK is the operating name of The Dystonia Society. The Dystonia Society is registered as a charity in England and Wales (1062595) and in Scotland (SC042127)


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