The Wales Neurological Alliance is a focused and purposeful forum of not-for-profit organisations and groups representing many thousands of people affected by neurological conditions in Wales. We work closely with the alliance to ensure that dystonia is highlighted in everything they do especially using patient stories and experiences.

We have been represented on the Cross Party Group on Neurological Conditions at the Welsh Senedd for many years. Through this we have directly submitted evidence and enabled members to provide their views through surveys.