Help and support Frequently asked questions Help and support FAQs How will Dystonia UK support me? Dystonia UK is here for you every step along the way. We… facilitate the 70+ physical and online support groups that are run by our amazing volunteer coordinators which give the opportunity to share experiences and meet others with dystonia provide information through our website, social media channels, booklets and 'Dystonia Matters' magazine host webinars featuring medical professionals and specialist speakers lobby on behalf of dystonia patients to engage governmental bodies and raise awareness of the condition are active members of policy making organisations in order to affect real change in the treatment and services for neurological conditions build relationships with pharmaceutical companies and medical professionals to ensure the voice of dystonia patients is heard produce the 'Dystonia Matters' podcast to magnify the voice of people living with dystonia create national campaigns to increase recognition of the condition across the UK and worldwide join together with our sister dystonia organisations across the world to raise increased awareness during Dystonia Awareness Month host virtual and in person events including the annual 'Dystonia Matters Live' conference and 'Living with Dystonia Days' which bring together medical professionals and other clinicians to discuss advances in research as well as ways to live well with the condition