Having dystonia doesn’t automatically mean you consider yourself to be disabled. It depends on how much your dystonia affects your ability to carry out normal day-to-day tasks and quality of life.

Some find they can manage well living with dystonia, while others find the condition significantly impacts their life and therefore may consider themselves to be disabled.

There is no single definition of disability in use in the UK, however, if you’d like to find out more about the term we recommend starting here:

  • Disability Rights UK, a charity led by people with diverse experiences of disability and health conditions from across different communities have a helpful overview.

  • The UK Government website also has some guidance.