About the group

Set up in 2013, this group is for younger adults with all forms of dystonia. The group meets virtually through a closed facebook page that gives its members the opportunity to share experiences and support one another. The group has occasional face-to-face get togethers coordinated by two volunteers who also help to manage the facebook page and offer support and direction to the online group.

Future meeting dates

This is a virtual group on Facebook. Please click here to join.

Group Contact

Group Contact Name: Jess Horton, Nicholas Calder-Bundy and Kerry McDaid
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 020 7793 3650 or [email protected]