About the group

This group was set up in 2012 and meets to give members an opportunity to hear speakers and meet for a coffee and chat. The group meets 3/4 times a year in a variety of venues. There is usually a speaker and an opportunity to have a chat and coffee and to share experiences and ideas. The group also operates a facebook page to allow people to keep in touch between meetings. The group is organised by 2 volunteers.

Future meeting dates

No future meeting dates listed at present.

However you may find the following meeting of interest:

  • Dystonia Patient Support Group Meeting at University Hospital of Wales Social Club on Wednesday 21st March 2018, 5:30pm-7:30pm. Please note this meeting is not organised by the Dystonia Society so contact 029 2074 8245 if you would like to attend.

Group Contact

Group Contact Name: Robert James
Group Contact Number: 0845 899 7110
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 020 7793 3650 or [email protected]