About the group

This group was set up in 2010 and meets to give members an opportunity to get together for mutual support, refreshments and a chat. This is a friendly and welcoming group who aim to meet three or four times a year, often with a guest speaker. The group meets in Belfast at varying venues and the meetings usually start with refreshments (including locally sourced scones). Members come from all over Northern Ireland to attend the group meetings. Barbara and Neil Stacey are the coordinators at present. Please look out for them at meetings and introduce yourself if you are coming along for the first time. There are a number of volunteers who help to run the group and they support fundraisers in the area.

Future meeting dates

Click here for upcoming meetings.

Group Contact

Group Contact Name: Neil and Barbara Stacey
Group Contact Number: 0845 899 7100
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 020 7793 3650 or [email protected]