Your voice is really important, so we would love to hear from you with any ideas, news or stories you might have for inclusion in Dystonia Matters, on our website, e-bulletins and social media platforms.

Things you might like to share include news about dystonia research, awareness raising you have done, coping tips, or memories of loved ones who have recently passed away.
You might also like to share a personal story of your journey to diagnosis, or your experience of a particular treatment, or about how you live with dystonia day to day.

You can submit news at any time but if you would like it to be considered for inclusion in Dystonia Matters Issue 97 (Autumn 2018) please submit before 31st August 2018. Please note we have limited space in Dystonia Matters so if your news does not fit we may instead publish it online through one of our other channels.

To submit please send no more than 150 words for news items or no more than 500 words for personal stories and include a high resolution photograph to [email protected] FAO Bernie McMahon