Coming to terms with a diagnosis of dystonia is a challenge for everyone. There will inevitably be a process of adjustment which for many will be distressing. It can often be helpful to talk to our helpline during this period. for some tips to help cope click here.

It is also important to be aware that, although mental health conditions do not normally cause dystonia, there can be an important relationship in some cases between dystonia and mental health conditions such as stress, depression and anxiety. Mental health is a sensitive topic for many people with dystonia as many cases of dystonia are initially mistaken for a mental health (or psychological) condition. In the vast majority of cases, dystonia is a neurological illness and does not have a mental health cause.

Mental health conditions are very common and nothing to be ashamed of. If someone with dystonia has a mental health condition then it is vital to ensure that it is treated - as this can substantially help the process of managing dystonia. Click here to read about dystonia and mental health.

In addition, some people find that complementary therapies can be helpful in reducing stress. In a recent questionnaire, 62% of those who tried Mindfulness (meditation) reported it as being helpful.


The Dystonia Society provides the information on this page as general information only. It is not intended to provide instruction and you should not rely on this information to determine diagnosis, prognosis or a course of treatment. It should not be used in place of a professional consultation with a doctor.

The Dystonia Society is not responsible for the consequences of your decisions resulting from the use of this information, including, but not limited to, your choosing to seek or not to seek professional medical care, or from choosing or not choosing specific treatment based on the information. You should not disregard the advice of your physician or other qualified health care provider because of any information you receive from us. If you have any health care questions, please consult the relevant medical practitioner.