About the group

Three groups came together in 2011 to work co-operatively as one group: London Central (set up 1988); London South West (set up 1996) and Surrey (set up 2004/5). The group meets 3/4 times a year to give members an opportunity to get together to hear a speaker and for support. Refreshments are provided and there is time for a chat and a raffle. Refreshments are provided by volunteers and a small charge is made that helps to cover the cost of the venue. This group has a number of volunteers who form the committee and include a treasurer, chairperson and secretary. The committee organises and runs the group meetings. There are additional helpers who help with taking donations at the door, helping with the raffle and fundraising. A further helper ensures there are leaflets at the hospital. The group also meets for additional social events such as a visit to Kew Gardens and Christmas lunch. This group usually has between 25 and 35 people that attend the meetings.

Future meeting dates

Click here for upcoming meetings.

Big Fun Run

Saturday 19th October at 11am, Crystal Palace Park

Coral Datta from the group will be taking part. Why not go along to cheer her on.

Group Contact

Group Contact Name: Ian Boddington (London and London SW); Linda Barns (Surrey)
Group Contact Number: 0845 899 7127 (London and London SW); 0845 899 7136 (Surrey)
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 020 7793 3650 or [email protected]