About the group

This group was started in 2006 and meets to give members an opportunity to have a coffee and chat with occasional speakers and demonstrations. Refreshments (often including a light lunch) are provided, and occasionally a raffle is held. The group meets 4 times a year for regular meetings including a Spring Lunch. The group has a volunteer who organises and runs the group meetings. They usually have between 8 and 24 people who attend the meetings. The group meets in a conference room at a Day Hospice, a local garden centre restaurant or a room at the pub! The venue is paid for from a grant that the group have obtained from a Trust (previously members contributed). They issue a local quarterly newsletter and although it does not meet for other events and activities, they give support to individual member’s fundraising events.

Future meeting dates

Click here to see upcoming meetings.

Group Contact

Group Contact Name: Anne Alderton
Group Contact Number: 0845 899 7150
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 020 7793 3650 or [email protected]