Dystonia in general
  •  www.dystonia-foundation.org (US organisation) is the website of the Dystonia Medical Research Foundation (DMRF) of the USA which is the largest dystonia membership organisation in the US.
  • www.dystonia-europe.org - Dystonia Europe was formed in 1993 as European Dystonia Federation — the European umbrella organisation for national dystonia groups.
Sites dedicated to specific forms of Dystonia
  • www.torticollis.org (US organisation) this is a site dedicated to torticollis with its own message board. 
  • www.drdcentral.com (US organisation) is a site dedicated to Dopa-Responsive Dystonia.
  • www.bleparospasm.org  (US organisation) Site run by the Benign Essential Blepharospasm Research Foundation.