About the group

This group started in 1988 and meets to give members an opportunity to hear a speaker, have a coffee and chat and get up to date on any news and find out about future events. Refreshments are offered. They have a raffle. The group meets 3 times a year for regular meetings and meets for other events and activities throughout the year. The group has a core of volunteers who organise and run the group meetings. Other members assist with refreshments, running the “bring and buy” and so on. The group meets in a hospital and there is no charge for the venue, but a charge of £1 is made to cover refreshment costs. The group usually has between 15 and 20 people that attend the meetings. The group meets for an extremely popular “pot luck” lunch at Christmas where members enjoy having time to just “catch up” and bring some finger food to share. New attendees are always welcome as are family and friends of those affected by dystonia.

Future meeting dates

Click here to see upcoming meetings.

Group Contact

Group Contact Name: Sue Smith
Group Contact Number: 0845 899 7121
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 020 7793 3650 or [email protected]