By making a gift in your Will to the Dystonia Society you'll be making a major contribution towards improving the lives of people living with dystonia across the UK

Gifts in Wills, or Legacies, are a significant source of support for the Dystonia Society. Without these generous gifts much of our vital work, including our Helpline and Support Services and funding research, would just not be possible.


Why leave a gift to the Dystonia Society?postitwills 

"There's so little awareness of dystonia it has been hard. There's been lots of tears and anger and our family has been under a huge strain - it's shown in all of us - but having a diagnosis has meant we can move on."

A parent on how her child's dystonia has affected their family

"It's like coming out of a long tunnel. For so long we've waited for someone to take our case seriously and all this time John has been a shell of his former self. For the first time, we were taken seriously and have a proper programme of treatment. The doctor apologised to us for our former treatment by the NHS. At least we have hope and it's all thanks to the Dystonia Society"

A family member of a dystonia sufferer who used our Advocacy Service to ensure that a treatment programme was being offered.

We are enormously grateful to those who remember the Society in their Wills. All the new projects we have undertaken recently have only been possible due to income from legacies.


How to make a gift in your Will

It's easy to include a legacy to the Dystonia Society in your will - simple instruct your solicitor of our name, address and Registered Charity Number:

The Dystonia Society
3rd Floor
89 Albert Embankment

Registered Charity Number in England and Wales 1062595 and in Scotland No. SC042127

Alternatively, to update your Will, complete our Codicil form and send to your solicitor. Codicil forms are also available from the UK Office if you would prefer a hard copy.


Organisations & Useful Contacts

The Dystonia Society is a partner of The Good Will Partnership.

Visit their website or contact them on 01296 680 463


We are also partners of Wills and Legal Services


For information on finding a solicitor, visit The Law Society website or contact them on 020 7320 5757

If you would like further information on making a gift in your will, please contact Ann Dedman, 020 7793 3659 / 07957 901 652 or [email protected]. We understand that your will is a private matter and will keep anything discussed in confidence and without obligation.