Joanne DayMy association with the Dystonia Society began in 1990 when at the age of 16 I was diagnosed with dystonia. In 2000 I began working for the Society on a voluntary basis when I was asked to organise one of the first Living with Dystonia Days which subsequently became the format for future events to be held all over the country.

Following completion of my first degree in Medical Science, I worked within Pharmaceutical Sales for a few years, but in 2003 when I saw an advert for a job with the Dystonia Society I applied and was offered the position of Regional Co-ordinator and since then albeit in differing roles and balancing working with studying, I have remained working with the society.

I had always wanted to qualify as a Physiotherapist and being encouraged by the Society’s CEO who thought that once qualified the Society would benefit from my experience and knowledge, I applied and was accepted onto a Master’s Degree in Physiotherapy. Upon qualifying I balanced working with the Society as their Information Officer and as a Physiotherapist at a children’s hospice where I gained invaluable experience in treating and handling children with neurological and metabolic disorders.

In 2014 my position evolved, and I became Research and Information Lead and I now utilise my accumulated medical knowledge and experience to write the fact sheets / leaflets / booklets and articles for the newsletter. I also promote, secure and monitor Research Projects for the Society. Having been involved with the Dystonia Society for nearly 30 years, I have watched and as part of its dedicated team helped it grow from strength to strength and am passionate in my desire to help and raise awareness of this neurological condition, knowing and understanding the full sphere of its impact.

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