About the group

This group started in 1994 and meets to give members an opportunity to get together for a coffee and chat. The group also meets for other events and activities including meals out, awareness raising, and fundraising. The group usually has between 6 and 12 people that attend the meetings. Over the years, the group has welcomed speakers including members of staff from head office, a doctor from Romford’s botulinum toxin clinic and alternative therapists. The group co-ordinator organises the meetings, manages the money with help from the Communications and Fundraising Officer who co-ordinates fundraising events. Other members of the group help at meetings and with fundraising and awareness raising activities.

Future meeting dates

Click here to see when the group is next meeting.

Group Contact

Group Contact Name:
Group Contact Number: 0845 899 7117
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 020 7793 3650 or [email protected]