About the group

This group started in 2013 and holds meetings every two months, giving members an opportunity to share their experiences of living with dystonia, their current treatments, concerns, tips and tricks to dealing with dystonia amongst other things. The meetings are held in a warm, comfortable and friendly environment, with refreshments available and good days…biscuits! We welcome speakers from many walks of life, and thus far have had medical and care team professionals, right through to family members telling their dystonia journey in an effort to share information and support one another. Fancy coming along? Just call our group contact for details of upcoming meeting dates, or check this page for updates throughout the year… All welcome, even bring a friend if it helps, we assure you a warm welcome.

Future meeting dates

  • Meets every two months - 11:00 to 13:00 - venue tba

Group Contact

Group Contact Name: Dorothy Chisholm
Group Contact Number: 0845 899 1049
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 020 7793 3650 or [email protected]

Photos

Edinburgh Group

Edinburgh Group