About the group

The group was started in 2008 and meets for an opportunity to get together and share experiences and to listen to occasional speakers. The group is supported by a number of volunteers who arrange the meetings and manage the money. They also undertake the jobs that are needed to be done at the meeting. The group meets in a local hall situated at the edge of a large free car park. A raffle covers the cost of hiring the hall. The group has between 10 and 20 members attending meetings.

Future meeting dates

No future meeting dates listed at present.

Group Contact

Group Contact Name: Kay Frost
Group Contact Number: 0845 899 7149
Group Contact Email: [email protected]

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 020 7793 3650 (Calls cost 3p per minute plus your phone company's access charge.) or [email protected]