This brief guide has been developed to support the appropriate commissioning of treatment for dystonia.

Dystonia is a very complex condition which has far-reaching consequences for patients,primary and secondary healthcare services, society and the wider system.

The guide aims to raise the profile of dystonia as a long term condition, and seeks to demonstrate the whole system impact when patients are either not treated at all, or outside of effective treatment time parameters – in particular, it examines the negative impact on the quality of life.

This guide does not attempt to introduce a ‘one size fits all’ approach to the management and treatment of dystonia, but seeks to provide an opportunity for commissioners and providers to work together, to ensure that key service and treatment standards are commissioned and managed at a local level.

It does not promise to be a panacea, but rather a discussion document that can be used by secondary care clinicians with their local commissioners, to ensure that dystonia services and treatment are both better understood and commissioned appropriately within the new NHS.

Click here to download our guide Adult-onset dystonia: The importance of effective and timely treatment.


The Dystonia Society provides the information on this page as general information only. It is not intended to provide instruction and you should not rely on this information to determine diagnosis, prognosis or a course of treatment. It should not be used in place of a professional consultation with a doctor.

The Dystonia Society is not responsible for the consequences of your decisions resulting from the use of this information, including, but not limited to, your choosing to seek or not to seek professional medical care, or from choosing or not choosing specific treatment based on the information. You should not disregard the advice of your physician or other qualified health care provider because of any information you receive from us. If you have any health care questions, please consult the relevant medical practitioner.