Share your story of living with dystonia through the pandemic to ensure your experiences are represented as part of BBC news.


The BBC are collecting as many experiences as possible of disabled people affected by the pandemic to feature in a number of news pieces that will be aired as part of main BBC news bulletins on the TV, radio, and online. You can share your experience through a short survey or by sharing your story with the organiser, BBC Disability News producer, Ruth Clegg.

The survey is completely anonymous, but Ruth would also love to hear from people who are happy to share their stories. We think this could be a valuable opportunity to highlight the huge impact the pandemic has had on neurological services across the country and to help raise awareness of dystonia.

Who can take part?

The survey aims to collect the experiences of disabled people in the UK during the COVID-19 pandemic. It is open to all though.

How long will it take?

5-10 minutes.

Take the survey

Share your story