The only national charity providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia
We run a range of events, including Living with Dystonia Events and Self Management Events. Our local support groups also regularly hold meetings and events.
Living with Dystonia Events aim to increase your understanding of dystonia and ways of coping with the condition through specialist speakers and workshops. Events have already been held in several areas of the UK and more are in the planning stages.
Dystonia Self-Management Events explore different ways to help you learn to manage life with a long-term chronic condition.
Self management techniques can help you:
There are a number of support groups throughout the UK that are run by volunteers. You can read about all our groups here.
Upcoming meetings of our support groups can be seen below.
New Year meal
Local support group meeting.
Annual meeting including guest speakers.Read more
Local support group meetingRead more