The only national charity providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia
The Dystonia Society aims to support and facilitate research into the causes, symptoms and treatments of all forms of dystonia.
You can read about current and past research projects below. (If you would like to read about our past research projects please select the 'Completed research' filter.)
If you would like to be involved in research please click here.
To hear more about research and our work please become a member and receive our mailings here.
Read our news updates about dystonia research here.
To contact us about research or with any questions please get in touch with the Dystonia Society Research and Information lead, Joanne Day, [email protected] or 0845 458 6277.
The Dystonia Society is currently funding a research project at Manchester Metropolitan University, where the team has been developing real time ultrasound. This software would help a clinician to identify the dystonic muscles in cervical dystonia requiring botulinum toxin (BoNT) injections.
The Dystonia Society’s seed funding for a new research project in 2015/6 was awarded to Dr Tom Gilbertson of Ninewells Hospital in Dundee.
The Society provided funding to the National Hospital for Neurology and Neurosurgery to research the use of hand therapy for the treatment of focal hand dystonia.