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A.D.D.E.R.

ADDER is a north east of England charity which offers support and guidance to patients with dystonia or other similar conditions and their loved ones.Read more

Aberdeen

Meets every month in Aberdeen for food and support.Read more

Airdrie

This group provides support to those living with dystonia in Airdrie. They meet fortnightly.Read more

Berkshire

The group was established in 2008 and meets to give members an opportunity to get together to meet other members and share their experiences over a sit down meal.Read more

Bournemouth Eye Hospital

The Blepharospasm Group at Bournemouth Eye Hospital is an affiliated group.Read more

Cambridgeshire

This group started in 2010 and meets to give members an opportunity to get together for mutual support, refreshments and a chat.Read more

Cornwall

The Cornwall Dystonia Society Support Group was established in 2010 by a number of active people with various forms of dystonia, and by their partners/carers, all of whom live in Cornwall.Read more

East Hampshire

This group started in 2004 and meets about 4 times a year, usually with a speaker followed by an informal chat for mutual support and encouragement.Read more

East Sussex

The group was started in 2008 and meets for an opportunity to get together and share experiences and to listen to occasional speakers.Read more

East Yorkshire

This group aims to be a place to get together with others affected by dystonia and an opportunity to exchange ideas and share experiences.Read more

Edinburgh

This group started in 2013 and holds meetings every two months, giving members an opportunity to share their experiences of living with dystonia, their current treatments, concerns, tips and tricks to dealing with dystonia amongst other things.Read more

Essex

This group started in 1994 and meets to give members an opportunity to get together for a coffee and chat. The group also meets for other events and activities including meals out, awareness raising, and fundraising.Read more

Furness & South Lakes

This group was started in 1997 and meets for fundraising and awareness activities (such as running several teams in the Keswick to Barrow sponsored walk). They also offer chat and refreshments (which are paid for through fundraising events).Read more

Glasgow

This group meets formally once every three months as well as meeting informally in a coffee shop on the third Monday of the month.Read more

Hertfordshire

This group started in 1988 and meets to give members an opportunity to hear a speaker, have a coffee and chat and get up to date on any news and find out about future events.Read more

Inverness

Providing support to people affected by dystonia living in and near Inverness.Read more

Kent

The Kent Group was started in 1988 and meets to give members an opportunity to have a coffee and chat, with occasional speakers. Meetings are semi-formal but allow plenty of time for discussion.Read more

Lancashire & Fylde

This group was set up in 1988 and meets to give members an opportunity to have a coffee and chat & swap helpful tips and remedies, with occasional speakers and demonstrations. Refreshments are available. The group meets 7/8 times a year for regular meetings and for other events and activities throughout the year.Read more

Lincolnshire

This group was started in 2006 and meets to give members an opportunity to have a coffee and chat with occasional speakers and demonstrations.Read more

Liverpool & Merseyside

This group was set up sometime in the 1990’s and meets to give members an opportunity to have a coffee and talk about their problems around dystonia, find out information and help each other.Read more

London, London SW & Surrey

Three groups came together in 2011 to work co-operatively as one group: London Central (set up 1988); London South West (set up 1996) and Surrey (set up 2004/5). The group meets 3/4 times a year to give members an opportunity to get together to hear a speaker and for support.Read more

Manchester

This group meets twice a year at a central Manchester venue to give members an opportunity to listen to a speaker on aspects of dystonia or a subject relating to general health and wellbeing.Read more

Norfolk & Suffolk

Provides support for people living with dystonia in Norfolk and Suffolk. They often work closely with the Cambridgeshire group.Read more

North East

This sociable group meets every 3 months for lunch in Newcastle upon Tyne. The group is active in fundraising, awareness-raising and providing mutual support.Read more