A clinical tool for real-time analysis and visualisation of cervical muscles for cervical dystonia (Manchester Metropolitan University)

The Dystonia Society is currently funding a research project at Manchester Metropolitan University, where the team has been developing real time ultrasound. This software would help a clinician to identify the dystonic muscles in cervical dystonia requiring botulinum toxin (BoNT) injections. Read more


Meets every month in Aberdeen for networking and support Read more


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Acquired dystonia

In acquired dystonias, the dystonia is caused by damage or degeneration of the brain (for example after brain injury or stroke) or exposure to particular drugs. Read more


This group provides support to those living with dystonia in Airdrie. They meet fortnightly. Read more


Every time you buy something from AmazonSmile, they will make a donation! Read more

Annual reports and accounts

Listing of published Annual Reports and Accounts Read more

Awareness raising in clinics

We are looking for people who could help us raise awareness by delivering materials to their local clinic or treatment centre. Read more

Become a volunteer

Volunteers make a huge contribution to the work of The Dystonia Society. Here are some of the ways you can get involved. Read more


The group was established in 2008 and meets to give members an opportunity to get together to meet other members and share their experiences over a sit down meal. Read more

Best Practice Guide

In this guide you will find information about dystonia, classification, types of dystonia by classification and symptoms, early-onset dystonia, the impact of dystonia, dystonic storms, "brittle" dystonia and status dystonicus. Read more


Eye dystonia (the medical term is Blepharospasm) is uncontrollable and often painful muscle contractions around the eye. Symptoms of eye dystonia may include excessive blinking and involuntary closure of the eyelids. Read more

Blinking and eye problems

Most abnormal blinking or twitching of the eye clears up quickly - within a few hours of when the symptoms appear. If the symptoms do not go away one possible cause is eye dystonia. Read more

BMJ Learning Module

A training module to increase awareness of dystonia amongst GPs on the BMJ Learning website. Read more


Some suggestions of books containing information about dystonia. Read more

Botulinum toxin injection

Botulinum toxin injections are used to reduce the excess muscle activity caused by dystonia. The injection enables the botulinum toxin to be targeted directly into the muscles affected by dystonia. The toxin has an effect on the nerves at their junction with the muscles. Read more

Botulinum toxin: Managing swallowing difficulties

Botulinum toxin injections are an effective treatment and provide significant relief for the majority of people with dystonia who receive them. The advantage of botulinum toxin over ordinary medication is that the toxin can be targeted only at the muscles causing the dystonia. However, as with all medicines there are possible side effects. Read more


This group started in 2010 and meets to give members an opportunity to get together for mutual support, refreshments and a chat. Read more

Care of the body

Information on physiotherapy, physical exercise and diet. Read more

Causes of dystonia

The cause of dystonia is not fully understood. There appears to be a problem with the region of the brain called the basal ganglia. In most cases where dystonia appears in adults and some cases where it appears in children, there is no clear explanation for why this problem arises. Read more

Childhood Dystonia Audit (Evelina Children's Hospital)

The Society provided funding to the Evelina Children’s hospital to review its records to assess the impact of childhood dystonia and the results of therapies provided on 2011. This research has now resulted in two important published papers. Read more

Commissioning Guide

This brief guide has been developed to support the appropriate commissioning of treatment for dystonia. Dystonia is a very complex condition which has far-reaching consequences for patients,primary and secondary healthcare services, society and the wider system. Read more