Dr Kathryn Peall, Dystonia Wales and Cardiff University have announced a piece of research for individuals living with certain forms of dystonia in Wales.

For people with myoclonus-dystonia

The team are developing a worldwide registry of people with myoclonus dystonia. This will help give them a better idea of how many people are affected with this condition, as well as a better understanding of the disorder.

For people with dystonia

The team are also trying to gain a better understanding of the symptoms experienced by people with primary dystonia, and how this affects them on a day-to-day basis.

For both myoclonus dystonia and dystonia, a better understanding of the movement (motor) and non-motor symptoms will help give the team a better idea as to how these conditions affect everyday life. Non-motor symptoms include factors such as memory, mood, sleep, pain and quality of life. By comparing the information from people with myoclonus dystonia, dystonia and those not affected by dystonia (controls), they hope that the study will improve the understanding of these conditions, and help find better treatments in the future.

For more information about the study and how to register please visit the website: 

https://movementdisorders.wales/

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