In May 2017, Dorothy Chisholm, our Scotland Officer, was contacted BBC Radio Scotland to say that a lot of people had emailed/phoned in during and after being featured on the Kaye Adams Show. People were extremely pleased that there was a discussion about Dystonia.

"Due to this, I was asked to attend the studio in Glasgow with Steven Jardine during awareness week which was fantastic awareness raising.

One of my members from Airdrie had written into the show about his Dystonia and after discussions with the BBC they decided to ask John Inglis from the Airdrie group along.

Stuart Cassells, a founding member of the Red Hot Chilli Pipers, was asked along as well. Stuart had to give up piping due to Dystonia in his hand. The Society and I had tried to help Stuart after his diagnosis.

Stuart and the band had travelled the world piping and then focal hand dystonia interfered with his piping so in the end, he had to give up.

It was a very interesting and nerve-racking session on BBC Radio Scotland. I was asked a lot of questions about dystonia and John and Stuart about their dystonia. It went really well and everyone was really pleased with how we all came across.

After meeting Stuart at the BBC, I contacted him to see if he would be able to attend the Glasgow group at the end of August to talk about his Dystonia journey.

Beth Bain who was covering the group wrote this about the session and put it onto the Scottish Facebook page.

“Stuart Cassells, founder member of The ‘Red Hot Chilli Pipers’, was speaking at The Glasgow Group yesterday. Stuart told us his life story, from playing the chanter as a young boy, progressing to the bagpipes, winning lots of competitions, joining a pipe band, studying bagpipe playing and graduating from The Royal Conservatoire of Scotland and travelling the world with The Red Hot Chilli Pipers.

He followed on by telling us how his Focal Hand Dystonia reared its ugly head, how it affected his playing of the pipes and how, despite trying everything to overcome this, he had eventually to give up piping and leave ‘his band’

He now has a successful career in the whisky industry, not promoting the Scottish bagpipes worldwide, but instead promoting Scotland’s famous malt whiskies.

Everyone thoroughly enjoyed listening to Stuart’s very interesting life story”.

It was an extremely successful meeting and Stuart answered lots of questions from the members’ attending.