Date and times Expand The conference will be held over two days, Friday 25th and Saturday 26th of September 2020. Each day will have two sessions: Morning sessions: 9:30am: pre-recorded presentation made available to attendees 11am: live Q&A starts on Zoom 12pm: networking starts on Zoom 1pm: session closes Afternoon sessions: 1:30pm: pre-recorded presentation made available to attendees 3pm: live Q&A starts on Zoom 4pm: networking starts on Zoom 5pm: session closes
Programme Expand Campaigning for Change Friday 25th September 2020, morning session One of our roles as a national organisation is to magnify the voice of dystonia patients and to raise awareness. Much of our work in this area is facilitated by Neurological Alliances from across the UK. Policy experts will be sharing their thoughts on neurology care and how we represent the community to continue pushing for more awareness and change at a governmental level. Main speaker: Georgina Carr, Chief Executive of Neurological Alliance England Panellists: Tanith Muller, The Neurological Alliance of Scotland David Galloway, Northern Ireland Neurological Charities Alliance Rebecca Brown, Welsh Neurological Alliance Mental Health Matters Friday 25th September 2020, afternoon session It has long been suggested that dystonia is “all in your head” and while we know that not to be true, it is a fact that any long term chronic condition can have an effect on your mental health and we are inviting specialists in the field to come and have an in depth conversation about how you can look after your mental health, especially in these incredibly stressful times. Main speaker: Professor Emeritus Marjan Jahanshahi, UCL Institute of Neurology Panellists: Mandy, patient speaker Nick, patient speaker The Future of Neurology Saturday 26th September 2020, morning session The future is always uncertain but following the events of the last few months it seems even more so. We’re asking leading clinicians their thoughts on the future of neurology. Clinicians from across the country will be sharing general updates on the NHS, digital innovations such as telemedicine and how their trusts have been impacted. Main speakers and panellists: Dr Peter Moore and Dr Richard Ellis, The Walton Centre Dr Eoin Mulroy and Professor Tom Warner, UCL Institute of Neurology Dr Jean-Pierre Lin, Evelina London Children's Hospital Dr Kathryn Peall, University Hospital of Wales Know Your Rights Saturday 26th September 2020, afternoon session In partnership with Disability Rights UK we will be sharing advice on a broad range of topics, including the PIP process, your employee rights, and how to navigate the educational system. We know how stressful it can be having to deal with these situations and this session will give you practical tools and tips to help guide you through what can be a difficult process. Main speaker: Michael Paul, Disability Rights UK Panellists: Gemma Stevenson, Sky Sports journalist Tully Kearney, World Championship Gold Medallist and Paralympian
Ticket prices Expand You can purchase a full conference ticket (includes all four sessions) Price for full conference ticket per person: £40 Alternatively you can purchase each session individually Price for each session ticket per person: £10 Dystonia UK members - please enter your member discount code at the checkout to receive a 20% discount on tickets and merchandise. Tickets are sold on a per person basis. We are operating an honour system and we ask that if more than 1 member per household will be attending that you purchase individual tickets (even if you are sharing a screen).
How do I book my ticket? Expand Each session has limited capacity so please do ensure you book early to avoid disappointment. You can book your tickets here.
How do I access the conference? Expand All you need is a computer/laptop, internet connection and a pre-purchased ticket. Once you've purchased a ticket you can find all the information you need for the day in your 'Welcome to Dystonia Matters Digital' email.
What does my ticket include? Expand Your ticket includes: a digital welcome pack access to the live event