About us News Conference for Parents and Carers Further details of our Conference for Parents and Carers of Children with Dystonia being held on 22nd September 2018 have been announced. The conference is to be opened by our new Patron Tully Kearney, Paralympic Swimmer whose motto is ‘Life … Be In It’. Speakers will include Dr Jean-Pierre Lin, Consultant Paediatric Neurologist, Hortensia Gimeno, Research and Clinical OT, and Dr Charlie Fairhurst, Head of Paediatric Neurosciences (all from Evelina Children's Hospital) and Dr Manju Kurian, Academic Paediatric Neurologist at Great Ormond Street Hospital Institute of Child Health and UCL. There will also be presentations from two young people with dystonia and their parents, a market place of organisations, and a children’s room where specialist carers will be offering support to children affected by dystonia so that their parents can attend the conference plus fun activities for children and young people attending. Book early to avoid disappointment! Click here to visit our event page to learn more and book places.