About us News Thank you Thank you to everyone who attended our big Conference for Parents and Carers of Children with Dystonia on Saturday 22nd September. It was a great success and a good opportunity to meet so many parents, carers & kids. Thank you also to all the volunteers, staff, entertainers and firemen who helped out throughout the day and put smiles on the kids' faces. We couldn't be more grateful for all you hard work and support. You can follow us on Twitter, Facebook and Instagram where we'll be sharing some of our best moments from the day with you all.