Our Royal Patron, HRH Princess Alexandra, held a reception in November 2016 for all the charities she works with. Among hundreds of guests the Dystonia Society was represented by our chair, Joanna Atkin, CEO Guy Parckar, and longstanding group coordinator and fundraiser Gill Jepson.

HM Queen Elizabeth II, Joanna Atkin, Guy Parckar and Gill Jepson in conversation.

There was one particular surprise guest in attendance as Her Majesty the Queen dropped in to the reception and spent time meeting some of the guests and hearing about their work. We are delighted to say that there is photographic proof of the Queen being told about dystonia, so hopefully every bit of awareness raising will help!