Picture of Joanna Atkin

I became involved with the Society in 1993 as a volunteer when my son was diagnosed with focal dystonia aged 11. Subsequently, he was diagnosed with DYT1 generalised dystonia, as was my daughter when she was aged 21. I welcomed the opportunity to work on behalf of the Society to raise awareness of the condition, becoming a Trustee in 2009 and subsequently becoming Chair of Trustees in 2012.
For 16 years, I worked in broadcasting as a press officer for BBC TV and then Channel 4, and I then worked for ten years in the not-for- profit sector, initially for Cancerkin, the breast-cancer charity established at the Royal Free Hospital, in events and next as a fundraising and training consultant with Midas Charity Appeals.
I have also taught courses in Latin and classical studies to students aged from 18 to 80 for a number of higher education institutions, including UCL, KCL, Warwick University and Birkbeck.
I also act as chair for Schools’ Admission Appeals panels for primary and secondary schools in the London boroughs of Islington and Barnet.
I enjoy literature, and have a passion for the theatre and the cinema as well as enjoying travelling with my husband, a retired economist.