This event aims to increase your understanding of your child’s dystonia and ways of coping with the condition through specialist speakers and will be a chance for you to meet other parents and carers to share experiences.

Speakers will include medical professionals and young people who have been through the process and have transitioned from paediatric services to adult services.

There will also be representatives from relevant organisations in a market place environment displaying and talking about how they can support you through your journey with dystonia from diagnosis, through treatment and school awareness raising and other topics. 

More details will be announced soon. Time TBA.

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