Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia

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What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways.



What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.


Author: Bernie McMahon

How do I cope with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.


Author: Bernie McMahon

Dystonia News

  • Website sponsor sought

    Our website has had 1.4 million visits in the last year! Do you know any businesses that would benefit from supporting us? Read more

  • Unity Lottery

    The Unity Lottery is a great way of supporting The Dystonia Society and every entry gives you a chance to be a winner! Read more

  • Introducing Gary Roberts

    Introducing your new Head of Fundraising & Communications – Gary Roberts. Read more

Fundraising Events

  • London Marathon 2018

    22 April 2018: The London Marathon has an absolutely amazing atmosphere that really needs to be experienced in person. Read more

  • Edinburgh Marathon Festival

    26 /27 May 2018: The excellent Edinburgh Marathon Festival is a terrific race series to achieve those PBs. Read more

  • London Super Nova 5K Run

    3 March 2018: Get the whole family involved with this fantastic fluorescent 5K in the beautiful Queen Elizabeth Olympic Park. Read more