Providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia

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What is dystonia?

Dystonia is the term used to describe uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. It is estimated to affect at least 70,000 people in the UK. There are a large number of different types of dystonia which affect people in widely differing ways.



What treatment is available?

Various treatments are available for dystonia. These will be determined by the type and severity of the particular condition.


Author: Bernie McMahon

How do I cope with dystonia?

Most people do manage to develop effective strategies for coping with the challenges that their condition brings. Successful treatments to lessen their symptoms, effective pain control and the acquisition of sensory ‘tricks’ all help to make social situations easier.


Author: Bernie McMahon

Dystonia News

  • Botulinum toxin treatment

    We asked Dr Marie-Helene Marion for her views on what can be done for people with dystonia when botulinum toxin treatment is not working well. Read more

  • Benefits which may help you

    Joanne Day, Research and Information Officer, has compiled a useful list of benefits and grants you may not be aware of. Read more

  • Introducing Andrea West

    Introducing your new Chief Executive - Andrea West Read more

Fundraising Events

  • London Marathon 2018

    22 April 2018: The London Marathon has an absolutely amazing atmosphere that really needs to be experienced in person. Read more

  • Edinburgh Marathon Festival

    26 /27 May 2018: The excellent Edinburgh Marathon Festival is a terrific race series to achieve those PBs. Read more

  • London Super Nova 5K Run

    3 March 2018: Get the whole family involved with this fantastic fluorescent 5K in the beautiful Queen Elizabeth Olympic Park. Read more