Explore The Info Hub where our amazing content can be found together in one easy to access place. From webinars to podcasts to animation - bringing real life stories and dystonia information to the dystonia community. Read more
The Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community. Read more
Join Team Dystonia UK as a member if, like us, you think dystonia matters. Read more
We exist to give hope and support to those living with dystonia. Creating UK and worldwide awareness.
The Dystonia Matters Podcast! Sharing personal stories and talking to members of the dystonia community.
Reach Out, Reach All Webinars featuring experts in neurological movement disorders.
Whether you've been recently diagnosed or been living with dystonia for a number of years, it's normal to have questions. We've put together some of our most frequently asked questions to help navigate the journey. If you can't find the answer you are looking for, you can always get in touch, and we will do our very best to help you.
09/08/2023 | Dystonia UK was pleased to award seed funding in 2016 to Professor Ian Loram and his team at Manchester Metropolitan University for their research project. In this article, Prof Ian Loram explains the learnings and next steps for turning the proof of concept into a robust clinical tool. Read more
15/12/2023 | Our Director of Fundraising and Communications, Dayna Ferdinandi, joined Ben Boulos from BBC Breakfast, to film a piece raising widespread awareness about dystonia. Read more
28/02/24 | A project aiming to improving quality of life of children and young people with dystonia through the development of consensus standards of medication use. Read more
Event Type: Marathon. Date: Sunday 21st April 2024. Location: London Read more
Event Type: Half-Marathon. Date: Sunday Sunday 8th September 2024. Location: Newcastle. Registration Fee: Free! Fundraising Target: £500. Read more