Useful links
Other reference sites
www.wemove.org
Arguably the most extensive site for neurological conditions on the web.
www.neuroguide.com
A searchable index of neurological resources on the internet.
www.ncbi.nlm.nih.gov
Website of the US National Centre for Biotechnology Research - allows you to search for articles in scientific journals.
www.nlm.nih.gov/medlineplus/dystonia.html
The Dystonia section of the US National Library of Medicine.
European sites
www.dystonia.co.uk
Website of UK based group ADDER - Action for Dystonia, Diagnosis, Education & Research.
BBC Dystonia page
www.cafamily.org.uk/Direct/d51.html
Dystonia page of Contact a Family, the UK site that allows users to contact other families in similar positions. Specifically aimed at families with disabled children.
www.dystonia.ie
Website of the Irish Dystonia Society.
www.dystonia-support4u.com
UK based dystonia support group.
www.dystonia-europe.org
The European Dystonia Portal - includes links to websites about dystonia in different European countries.
London BTX Centre
Website of a consultant neurologist specialising in botulinum toxin treatment.
US sites
www.dystonia-foundation.org
Website of the Dystonia Medical Research Foundation (DMRF) of the USA.
www.torticollis.org
A site dedicated to torticollis, with its own message board.
www.care4dystonia.org
Site covering a wide range of factual information; also has message boards on generalised dystonia, focal dystonia and alternative treatments.
www.drdcentral.com
A website resource for patients, and parents of patients, seeking information about Dopa-Responsive Dystonia.
Discussion groups and bulletin boards
www.dystonia-bb.org/forums/asd/
Dystonia bulletin board sponsored by the Dystonia Medical Research Foundation. Support and discussion for patients, family members and caregivers with all forms of dystonia.
www.dystonia-bb.org/forums/mwd/
Musicians with Dystonia Bulletin Board, sponsored by the Dystonia Medical Research Foundation.
www.dysphonia-bb.org/forums/sd/
Spasmodic Dysphonia bulletin board, sponsored by the National Spasmodic Dysphonia Association.
www.groups.yahoo.com/group/dystonia-support4u
A Yahoo! hosted message board; usage seems to be quite intermittent.
www.blepharospasm.org/forums/beb/
Blepharospasm bulletin board, sponsored by the Benign Essential Blepharospasm Research Foundation. Support and discussion for patients with Blepharospasm, Meige and Hemifacial Spasm, and their family members and caregivers.