Support services
Newsletter
Read the latest news from the Dystonia Society by downloading our newsletter, Dystoniamatters!
Helpline
Sometimes it is helpful to talk to someone who understands: not only about the condition, but how you may be feeling. Our telephone Helpline is available Monday to Friday from 10:00 to 16:00 to both members and non-members and to healthcare professionals.
Helpline number: 0845 458 6322 or 020 7793 3650
Local Support Groups
There are 45 support groups throughout the UK that are run by volunteers. Please see details below on the map and accompanying contact details. Do call the Group co-ordinators directly.
One-to-one service
We are pleased to announce that we will shortly be setting up a service to put members in contact with each other to provide mutual support. More details soon.
Local ‘Living with dystonia’ conferences
East Midlands (Nottingham): 6th September 2008
Liverpool: 20th September 2008
South East (Gatwick): December
More details to be posted shortly.
National AGM/conference
London, Wellcome Conference Centre (Euston Road, NW1): 1st Nov 2008
More details to follow.
Useful organisations
Links to some useful organisations.