Doing it for dystonia: Dystonia Awareness Week, 6-12 May 2007
28 February 2007Dystonia Awareness Week will soon be with us (6-12 May)!
This is our chance to work together to raise the profile of dystonia and hopefully some much needed funds too. We have a theme for the week - Doing it for dystonia! There will be lots of support from the office to help you make the most of the opportunity.
For instance:
- Why not invite friends or colleagues to dine for dystonia with you? We'd be delighted to send you your free Dining for Dystonia pack that includes specially printed paper coasters, napkins and invitation cards. Contact Margaret Woolmer on margaret@dystonia.org.uk for a pack, or to order posters and leaflets.
- You could help spread awareness by 'displaying it for dystonia' ensuring membership forms and posters are displayed in your community.
- You may want to spread the word through local newspapers. A 'pro-forma' news release will be available to send to your newspaper featuring a message of support from our new patron, Derek Thompson. All you need to do is fill in the gaps with your name and send it off to the papers in your area. Please contact Phil Baldy for more information, on phil.baldy@dystonia.org.uk
Of course, the patrons, trustees and staff will be doing their bit too: Lord Macdonald of Tradeston will be holding a flagship dinner for 28 specially invited guests on 8 May at the House of Lords. It will be an excellent opportunity to raise awareness of dystonia among some influential decision makers.
Our chairman, Martin Cross, will be leading an intrepid team of climbers in an attempt to scale the three highest peaks in Yorkshire in the Three Peaks Challenge. You can sponsor Team Dystonia by visiting www.justgiving.com/teamdystonia. All money raised will go to the Dystonia Society, as members of Team Dystonia are covering their own costs.