To find out more, please click on the links below.


About the group   Group Contact
Photos   Future Meeting Dates


About the group
This group meets every 3 months for lunch at the Toby Carvery in Newcastle upon Tyne. The support group has been established for around 8 years but many of the members have known each other for longer. Many of them met whilst attending hospital for treatment of their dystonia. The group has been growing as more people are being diagnosed. Great friendships have grown from the support group and many keep in touch daily. Members travel from Carlisle, Northumberland, Hexham, Gateshead, North Tyneside, Dubai, and America.
The group also put leaflets in the clinics at Walkerpark Hospital and the outreach clinics. Raising awareness of dystonia is important to them and so is fundraising but their main concern as a group is supporting and helping people who have dystonia now. 
If you would like to know more please get in touch with the group contact.


Future Meeting Dates
Date Time Location Other Information
07/12/2017 11:00 for a 12noon lunch The Toby, Kingston Park, Newcastle upon Tyne Christmas meeting.
If you are new to this group, or you would like to know more about their meetings, please get in touch with the group contact.


Group Contact
Group Contact Name: Pauline Dawson (phone) & Graham Huntley (email)
Group Contact Number: 0845 899 1050
Group Contact Email:

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 (Calls cost 3p per minute plus your phone company's access charge.) or 


There are currently no photos available.