Dystonia Self-Management Roadshow


One of the findings of our treatment questionnaire was that ongoing treatments, such as toxin injections, are very helpful but on average only mitigate around 50% of symptoms and in some cases only provide very limited relief. Given this, a more holistic approach to coping with dystonia is needed. It has been shown that coping with long- term conditions such as dystonia can be greatly helped for many people by looking at how the condition can be actively managed. To help with this, we have piloted a self-management roadshow in North West England and Scotland. The Roadshow has now expanded and is visiting more locations in the United Kingdom.

Dystonia Self-Management Roadshow: Learn to manage life with a long term chronic condition

Self management techniques can help you:

  • Feel confident, balance and more in control of your life with dystonia
  • Manage your condition and treatment together with health professionals
  • Be realistic about the impact of your condition on both yourself, your family, your friends and your work colleagues
  • Use your new found skills and knowledge to improve your experience of living with dystonia 

Note:The Dystonia Society operates a confidentiality policy to ensure information provided to us will be used solely for the purpose for which it is given and be kept confidential within the organisation. However, the Society may disclose information to the appropriate authorities without permission where it has a reasonable belief that there is concern that the health and safety or welfare of an individual is at risk.


Upcoming Workshops

Please note these dates are still provisional.

Title Date/Time Location  
No dates currently planned.

For more information on the Roadshow being run in England please contact Angie Brown on 0845 899 1041* or email selfmanagement@dystonia.org.uk

*Calls cost 5p per minute plus your phone company's access charge.


Upcoming Workshops

Title Date/Time Location  
Managing Treatment This event scheduled for 26th Oct has now been POSTPONED to a yet to be announced date St Stephen’s Church Centre, 260 Bath Street Glasgow G2 4JP To book a place please contact Dorothy Chisholm  (contact details below)

For more information on the Roadshow being run in Scotland please contact Dorothy Chisholm on 0845 803 1006** or email dorothy@dystonia.org.uk

**Calls cost 3p per minute plus your phone company's access charge.