Living with Dystonia


Whether you have been diagnosed with dystonia yourself, or you know someone who has, our services can make a real difference to you.

Helpline2 copy

Our telephone Helpline is available weekdays from 10am to 4pm to members, non-members and healthcare professionals.

Call 0845 458 6322* or 020 7793 3650 or email

*Calls cost 3p per minute plus your phone company's access charge.

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Our Advocacy Service can make your voice heard if you are being turned down for treatments, benefits or employment support

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This is your chance to view or join in discussions about anything to do with living with dystonia

Support Groups_copy

Find out about Support Groups in your area

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Find out about self-help techniques, sensory tricks, pain management and complementary medicines to make living with dystonia easier

Benefits and_Rights2_copy Find out about your rights and information on statutory benefits
Parents and_Carers2_copy Information for parents or carers of children living with dystonia
Living with_Dystonia_Events_copy Attend a Living with Dystonia Event in your area to learn more and meet others
Scotland copy Information on support available in Scotland
internet resources_copy Useful information and websites
Blogs copy Find out about other peoples experiences
other resources_copy Other resources - Books etc.
Videos copy Videos about dystonia