Guide to Good Practice


Dystonia is a neurological condition causing involuntary and sometimes painful muscle spasms resulting in abnormal movements or postures. It can affect movement, posture, speech, visual performance and mobility. There are thought to be over 70,000 adults and children in the UK who have some form of dystonia.

This document provides:

  • An authoritative guide to best practice for health/social care professionals who are involved in the treatment and support of people with dystonia and their families.
  • Guidance for managers responsible for configuring health services on the key issueselating to dystonia and best practice for delivery of services.  
  • Information about the impact of dystonia on people’s lives – to enable the professionalsinvolved to take positive steps towards resolving them.