To find out more, please click on the links below.


About the group   Group Contact
Photos   Future Meeting Dates


About the group
Set up in 2013, this group is for younger adults with all forms of dystonia. The group meets virtually through a closed facebook page that gives its members the opportunity to share experiences and support one another. The group has occasional face-to-face get togethers coordinated by two volunteers who also help to manage the facebook page and offer support and direction to the online group.
If you would like to know more please get in touch with the group contact.


Future Meeting Dates
Date Time Location Other Information
    Virtually on facebook Click here to join 
If you are new to this group, or you would like to know more about their meetings, please get in touch with the group contact.


Group Contact
Group Contact Name: Jess Horton, Nicholas Calder-Bundy & Kerry McDaid
Group Contact Email:

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 or 


There are currently no photos available.