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About the group   Group Contact
Photos   Future Meeting Dates


About the group

The West Sussex Dystonia Society Support Group for people with dystonia was started in 1993 and we are now twenty years on and still welcoming people into our meetings.

Over the years there have been many advances in the diagnosis of dystonia and we provide a welcoming meeting point for people who like to exchange information and find out more about their condition.

We have been meeting at the Chapel in Worthing Hospital, which is familiar to those who live locally, but we also have visitors from other parts of Sussex and Surrey who make the journey to attend. There is plenty of parking in the hospital grounds.

We try to invite guest speakers as often as possible and have had, in the past, a local dystonia consultant, a dystonia nurse, various alternative treatment and care organisations and members of the dystonia team from UK Office.

We also have a lively raffle, tea, coffee, biscuits and cakes. Most importantly, we value the interaction and the "not left out" feeling when meeting with others.

If you would like to know more please get in touch with the group contact.


Future Meeting Dates
Date Time Location Other Information
10/03/2018 14:30 Chapel, Worthing Hospital  
If you are new to this group, or you would like to know more about their meetings, please get in touch with the group contact.


Group Contact
Group Contact Name: Graham Ashdown
Group Contact Number: 0845 899 7138
Group Contact Email:

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 (Calls cost 3p per minute plus your phone company's access charge.) or


There are currently no photos available.