To find out more, please click on the links below.


About the group   Group Contact
Photos   Future Meeting Dates


About the group

This group was started in 1997 and meets for fundraising and awareness activities (such as running several teams in the Keswick to Barrow sponsored walk).  They also offer chat and refreshments (which are paid for through fundraising events).

The group meets during the year for meetings and other events and activities.  The group meets in a hotel.  They have an Awareness Day every other year with speakers, lunch and an opportunity to socialise.  There are usually 10 people that attend the meetings, and between 50 and 70 at the large Dystonia Awareness Day meetings.

The group has 10 regular volunteers who take on the 3 key roles plus they have a press liaison and publicity role and a general volunteer support role.  They have between 5 and 10 additional helpers who help with a range of tasks including refreshments, table and chairs, posters, managing stalls, selling tickets, making things and so on.

If you would like to know more please get in touch with the group contact.


Future Meeting Dates
Date Time Location Other Information
 We do not currently have any dates for this group. 
If you are new to this group, or you would like to know more about their meetings, please get in touch with the group contact.


Group Contact
Group Contact Name: Harry & Gill Jepson
Group Contact Number: 0845 899 7115
Group Contact Email:

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 (Calls cost 3p per minute plus your phone company's access charge.) or 


There are currently no photos available.