13166060 1116984808344973 11430958625831612 nThank you to everyone who helped to raise awareness of dystonia during this year’s Dystonia Awareness Week. It was a fantastic week which saw many people learning about dystonia through our website and social media as well as through events across the country. Here’s some of the highlights of what happened during the week:



Thunderclap and Social Media

Thank you to everyone who joined our Thunderclap on Facebook and Twitter. The message went out on Wednesday 4th May and we had 189 supporters who got the message about dystonia out to 122,235 people!

Thank you also to everyone who liked, shared, retweeted and commented on our Dystonia Awareness Week posts on social media. Our Facebook and Twitter posts on the first day of Awareness Week (Saturday 30th April) reached almost 30,000 people!


Royal Mail 2016

Cakes, bakes and dressing green!

There were lots of cakes eaten during the week, all in the name of dystonia awareness! Carol Huntley held a Tea Party once again at Newcastle University and Amanda Brown organised a dress green day at Royal Mail in Glasgow once again raising £1,050. And in the London office, staff baked mini cakes to give away with leaflets in the foyer raising awareness amongst staff at the many organisations also in the building.


On the Thursday of Awareness Week we launched our Q+A video with Harbinder Sandhu from Warwick Medical School who answered questions about her research project on dystonia and non-motor symptoms related to dystonia. If you would like to see the video click here...



Library display

Roger Taylor of the Oxford Support Group arranged a colourful and informative dystonia display at Farringdon Library to raise awareness in his local area. Well done Roger!

Active Awareness 

K2B 2016

Many people took a more active approach to raising awareness (and funds too!) during the week. Ian Bamford took part in a 100km cycle ride and Gill Jepson organised a very large team of walkers once again who took part in the Keswick2Barrow Walk and was joined this year by our CEO Guy Parckar.