Medical advisors Expand Our team of medical advisers operate across the UK with special interests including paediatrics, adult onset, botulinum toxin, ophthalmology, ear, nose & throat, psychology and research. They are: Dr Jean-Pierre Lin Dr Kathryn Peall Dr Marie-Helene Marion Mr Daniel Ezra Ms Lucy Hicklin Professor Emeritus Marjan Jahanshahi Professor Mark Edwards Professor Tom Warner You can find out more about our medical advisors on our team page.
Association of British Neurologists Expand The aim of the Association of British Neurologists is to promote excellent standards of care and champion high-quality education and world-class research in neurology. To support this they offer support, training, development, and networking opportunities to neurologists in the UK and Ireland.
British Neurotoxin Network Expand The British Neurotoxin Network (BNN) was founded in 2011 to gather British clinicians who use Botulinum toxin (BoNT-A) injections for the treatment of focal dystonia, spasticity, and other neurological disorders. It maintains information on clinics presenting both patients and doctors with the most appropriate medical centre for the treatment of each condition type. For many years, we have been invited to represent the patient voice at their annual meeting. We welcome this valuable opportunity to ensure your voice is heard.
British Paediatric Neurology Association Expand The British Paediatric Neurology Association is the professional organisation for doctors who specialise in the care of children with neurological disorders. It aims to promote the health and well-being of children with neurological disorders through: training and education of professionals working in the field of neurosciences research into neurological disorders affecting children & young people improvement of knowledge of professionals, the public and patients and their families through scientific meetings providing support to members to facilitate the delivery of the above objectives
NICE (National Institute for Health and Care Excellence) Expand NICE’s role is to improve outcomes for people using the NHS and other public health and social care services. They do this by: producing evidence-based guidance and advice for health, public health and social care practitioners developing quality standards and performance metrics for those providing and commissioning health, public health and social care services providing a range of information services for commissioners, practitioners and managers across health and social care Where appropriate we provide comments and evidence on clinical guidelines.In 2021 we were especially pleased to be involved in their work producing a new "Suspected Neurological Conditions" quality standard. You can read more about this work here.
National Voices Expand National Voices is the coalition of charities that stands for people being in control of their health and care. We are one of more than 140 charity members. This gives us access to a variety of reports and guidance that we can build into our own work of supporting people with dystonia and lobbying for better services. Their work falls into three streams: supporting national policy and system design so that people have as much control and influence as possible over decisions that affect their own health and care – as patients, carers and members of communities supporting the vital role that the Voluntary, Community and Social Enterprise sector plays in health and care supporting the adoption and spread of person-centred approaches
Healthwatch Expand Healthwatch are the independent national champion for people who use health and social care services. There is a local Healthwatch in every area of England. They support local Healthwatch to find out what people like about services, and what could be improved, and share these views with those with the power to make change happen. Healthwatch also help people find the information they need about services in their area. Healthwatch are a statutory body and we want to work with them to ensure that neurological conditions like dystonia are given the right priority in the design of local health and care systems.